Today is World Cerebral Palsy Day–Showing Respect and Love

I’m betting most of you know someone with Cerebral Palsy (CP). I know several people as a result of formerly being a case manager for those with developmental disabilities, not to mention a friend in high school and the daughter of a co-worker now. It’s a disorder that runs the gamut in how much disability it causes, but all with CP have challenges with movement and posture.

They also have challenges with public perception.

Children, we all know, can be cruel, especially when presented with a classmate who is different in some way. My friend Leigh and my co-worker’s daughter Anna (not her real name) were teased so much all through school that they became reclusive and had difficulty making friends. Leigh found a church group and Anna relates well to adults, but not people her own age.

Anna’s mom talked to Anna’s teachers, who allegedly all said the same thing: “we’ll just make it worse by punishing the children who tease.” (Maybe that’s true, maybe not–I’m not entirely sure Anna’s mom is telling me everything there.) Many schools have a zero tolerance policy with bullying now, and hopefully that helps children with disabilities survive the turmoil of their youth.

AdobeStock_370325084 [Converted]Then there’s the opposite reaction of too much sympathy. When I worked in a bookstore, a boy using a walker came in once and headed straight to the children’s section. He asked for help once getting a book down that he couldn’t reach, and aside from my usual can-I-help-you-find-anything, that was all he needed from me. When he was ready to check out, he put his selections in the walker, and we headed up the cash register, where an older woman gushed all over him.

“Oh, you brave little angel,” she said. “You remind me of my granddaughter, and I love her so much.”

She turned to me and said, “Poor thing. His life must be so hard.” This right in front of the boy.

“I think he does just fine,” I snapped, and checked him out. I was impressed that he handled his own finances–he was probably 11 or 12–and when his mom showed up seconds later (she’d been looking for books in another section) I told her as much.

She beamed and he smiled. “He insists. He’s pretty independent.”

So there you go.

I think most of those reading this blog already know this, but I’ll say it anyway. Children and adults with disabilities, CP and otherwise, need help with the things they can’t manage because of the limitations of their disability. That’s it. The rest of it is the life stuff we all face (okay, we all need help with that from time to time) and you can’t coddle or patronize them.

That’s how you show respect and love.


Image Credits: Friendship with Heart © artbesouro–stock.adobe.com; World Cerebral Palsy Day © Waseem Ali Khan–stock.adobe.com

Rules, Respect, and Giving a Rip

There was a time when, with a carload of friends, I, as the driver, was caught in a stop-and-go situation in a parking ramp after a basketball game.

“Look!” my friend Kathy said, pointing at another car. “They’re going the opposite direction! Let’s do that!”

We should have, and I had a split second to decide. There was no law, no rule really, against it. Nothing would’ve happened other than getting out of that ramp an hour or so earlier. But I couldn’t do it. The signs told us which way to exit. Going the other way was wrong.

I can’t help myself. I’m a rule follower.

I’ll tell myself and everyone else I’m being respectful, but bottom line, I’m scared of getting in trouble.

You bet I follow the red light/green light rules. Always have, always will.
You bet I follow the red light/green light rules. Always have, always will.

I even make sure I’m going in the “Enter” door when I shop at Walmart, and veer to the other side if I find I’m headed for the “Exit” door by mistake. Keep in mind the automatic doors have sensors on both sides, and no one so much as blinks if you go through the “wrong” door. On your average shopping day, there’s no danger or inconvenience in entering through the exit door (on Black Friday, it is, of course, a different story).

This wouldn’t bother me so much if I didn’t feel like I was being controlled by these rules. That, I think, is the dividing line for me between what is right and what is compulsive. I do not, for example, compulsively follow traffic laws. I do it for two reasons: safety, and I don’t want to get a ticket.

No, make that three reasons. It’s the law. Following it is what you do.

When I was in college — the first time —

it was a VERY conservative school, and students could receive what were called “minutes” for infractions of a plethora of really stupid rules. I think breathing too loudly on Saturday morning before 10 a.m. was one of them.

You’d get three minutes per infringement, and if you flouted your rebellion to a point of getting 30 minutes, you received what was called a “campus”, and “volunteered” three hours of your time to the school pulling weeds or some such.

In the history of the school, only a handful of students had made it until graduation without any minutes. I could’ve been one of them, except for two things: 1) I didn’t graduate, and 2) one Saturday morning I slipped up and talked to another student in the bathroom before 10 a.m. (I almost wasn’t kidding above).

She talked to me first, but no matter. And she was an RA, so I was screwed.

It would’ve been good for me to blast my radio

after hours a night or two, or (really bad) show up after curfew (there may have been more serious consequences for that. And, oh yes, curfew). It would’ve been really good for me to kiss a guy on campus (again, I’m serious, a violation of school policy), but that rarely was an option anyway.

I say it would have been a good thing for me because I might have understood what I only now am fully grasping: breaking certain rules doesn’t make you a bad person, or even untrustworthy. There are boundaries and I probably held mine closer than was healthy.

Certainly I didn’t need to trap me and my friends in that parking garage for more than an hour. If I’d gone the wrong way, worst case scenario half the other cars might have followed me. As it was, my decision cast a pall on the evening; that’s what we always remembered about an otherwise fun night.

Who's in Charge smStill, old dogs, new tricks. Forget dogs — I should be like my cats. They (reluctantly) follow the few rules I absolutely enforce and don’t give a rip about much of anything I else I ask of them. Somehow they know what really matters. I rarely reprimand them, or think any less of them for their indifference.


Photo credit (stoplight): © Graphic Stock; (Kitty and Candy) © geosap — stock.adobe.com

 

Pages of the World Book

“The world is a book and those who do not travel read only one page.”
― Augustine of Hippo

Travel, or otherwise explore the world.

It is easy to dismiss the decisions of others, particularly those of people in other cultures, if one has never traveled more than 100 miles from their place of birth. Brief trips to a large city for business travel are often sheltered, and the annual visit to the family cabin, albeit more than 100 miles away, isn’t truly traveling in the sense I’m speaking of here.

At the age of 19, my brother loaded his backpack and headed for Europe, Australia and New Zealand, hiking and taking odd jobs for about a year, as I recall. I believe that trip shaped him, helped him focus his priorities and exposed him to thinking different from that which he heard while growing up. He has always been a kind and thoughtful person, but traveling alone gave him a perspective he couldn’t get any other way.

He shared with me some of the conversations he had with complete strangers during his trip, and those words have changed me, so I know they changed him. I wouldn’t have survived the last few years without him, and I believe that foundational, transformational experience is part of the reason he has so much to offer me.

Over the years I’ve talked to parents who are agonizing over their son’s or daughter’s choice to travel for a time, giving up their dreams of a college education (or so it seems to mom and dad) for a hobo lifestyle. I tell them not to worry, and inevitably those children have gone on to greater things, some back to school, some not, but they knew that that time away from all that comforted them would be healthy.

The Whole World Kids

Even Prince William took off for ten weeks to volunteer in Chile, where he faced ribbing by other volunteers, such as less-than-complimentary nicknames, among other things, I’m sure. At the time he said, “I’m with a group of people I wouldn’t normally be with and getting along with them is great fun and educational. There are some real characters in the group who don’t hold back any words at all.”1

I imagine.

Several friends of mine graduated with honors from high school, went to a nearby college and moved on to career success in the same city they were raised in. Their standards and norms are measured by the world immediately around them, and they mock others whose lifestyle and thinking is foreign to them, even if those people vote for the same president they do. They are experts in their own world with no grasp of what motivates people outside the walls of their great city.

Not everyone can backpack through foreign countries, or even distant parts of their own country. It isn’t suitable for some to travel extensively. But the world we live in today gives us exposure through traditional and modern methods to pages of the World Book. It’s not the same as travel, but it still is an opportunity to grow.

Take the time to grow.


1 The Telegraph, December 10, 2000, “Hard work and high adventure for William in Chile.”

Image Credits: (World Map) © asantosg — Bigstock; (World Kids) © lenm — Bigstock

The Narrow Path of Middle Ground

Recently I was tempted to very loudly tell a salesperson to shut up and leave me alone.

I’ve worked retail long enough to know management puts a lot of pressure on sales associates to push the company credit card. They provide all sorts of helpful tools to overcome objections, and expect their workers to talk a certain percentage of customers into applying right then and there.

Most of the time, a bored sales associate rattles off a line something like, “Would you like to save ten percent today with a (company name) credit card and receive notices about special sales exclusively for our card-holding customers?” I smile and say thank you, no, and we proceed with the purchase.

Recently, however, my mom and I were shopping, and it didn’t go so smoothly. After the initial question, I replied, “We’re not interested.”

“You’d get special discounts throughout the year, and can easily take advantage of our already low prices.”

“We’re not interested.”

“It would only take a minute to apply. I’m sure you’d be approved.” Seriously? You’re sure?

“We’re not interested.”

“We have so much wonderful merchandise, I’d hate for you to lose out…”

Angry WomanThis was the point where I wanted to shout, “WE ARE NOT INTERESTED. JUST RING UP OUR PURCHASE AND STOP HARASSING US ABOUT YOUR DAMN CARD.”

It was my mom’s birthday, and we were shopping for her, so I stopped myself. Okay, I may not have done it anyway. But I really wanted to let this whiny-voiced woman know how offensive she was being.

Moderation in everything. I can’t say it’s outside the realm of possibilities that either my mom or I would apply for that company’s credit card in the future. If we do, I can guarantee it won’t be because of pushy sales tactics.

Persuasion is a game for diplomats. To truly bring someone around to your side, you need to find some common ground, build a rapport. I don’t know how you’d do that in the above situation, except to say I do know most of us expect the question and know whether or not we want to save ten percent today. Your best bet at winning me over is a friendly attitude and understanding smile.

But what if what you’re trying to sell is something far more personal, something that people feel passionately about? Never discuss religion or politics, the saying goes, and we all know why. You’re likely to end up in a fruitless argument.

Today I (somewhat foolishly) responded to a friend who is a true believer in an Unnamed Politician. Okay, Donald Trump. I’m not. Wisest to stay away from any confrontation, because I won’t change my friend’s mind. But he had written something on Facebook I strongly disagreed with, so I felt compelled to respond.

Flag 2 scI knew what not to say. I laid out the reasons for my feelings in a straightforward manner, and sought the narrow path of common ground with my friend. “I don’t expect any president to be perfect,” I wrote in part, “and I respect that it is a challenging job. I want all of our presidents to succeed, just as I want our country to succeed. I just don’t trust President Trump.”

My friend, who has different ideas than I do about what will make our country successful, replied in a gracious and kind manner, saying (among other things) that while he didn’t vote for President Obama, he was willing to give him a chance, but disagreed about the direction he was taking.

We will never agree about politics, but we will listen to the other, and maybe learn something valuable.

And we’ll remain friends, and that is more important than any argument about politics.


Image Credits: (Path) © studioturburu — Adobe Stock/Fotolia (Screaming Woman) © Igor Zakowski — Adobe Stock/Fotolia; (Flag) © Bigstock

The Truth Within

Three years ago I almost lost a good friend, largely over a misunderstanding.

Another friend stepped in and tried to straighten things out, and in doing so, made the already shaky relationship we had that much worse.

Female figures handmade oil painting on canvasShe chastised me for committing an offense I truly couldn’t see I was guilty of having done, citing a conversation I’d had with her husband as another example. By this time, I’d reconciled with the first woman, so I asked for her perspective about what our mutual friend had told me. I was concerned I might be blind to what would be a fairly significant problem.

She didn’t see the issue the same way, but I remained aware of this potential flaw in my character. Eventually I realized the problem was more likely something I’d already known about my second friend. She will not only defend her husband regardless of what he’s done (and for the most part, I can’t fault her for that), she will lash out at other people who dare to challenge him.

In this case, in my conversation with this man, we’d disagreed about an issue I strongly believe in. Typically with him I let go, even when I know he’s spouting baloney, because it isn’t worth it to disagree. This time, however, I stepped in it, rather than around it. I don’t apologize for that. I should have done it more often.

You can’t trust the “constructive criticism” that comes from a woman who is defending her husband, no matter how sincere she might be, or might think she is being, in trying to help a challenging situation.

Which brings it all back around to my response to her comments about this perceived flaw. I was inspired to write about this after reading K E Garland’s post, Monday Notes: Agreement #2, in which she discusses the second of the Four Agreements (from the book of the same name): “never take anything personally.”

The crux of this agreement is we take neither criticism nor praise personally, because it reflects the other individual’s state of mind, which can change with the wind.

I believe we should weigh what others say, both the good and the bad, but ultimately, we have to decide for ourselves what the truth is in any given situation.

lovely woman handmade oil painting on canvasHigh school was a challenging time for me, and there were plenty of days my appearance showed the depression, anger and hurt I was feeling so deeply. I could always count on my friends Leigh and Sue to compliment my hair or tell me I’d lost weight on those days. Trust me, the compliments reflected their kindness, not the truth about my hairstyle or figure.

Most of the time, our friends aren’t as transparent as Leigh and Sue were (and I’m thankful to this day for their friendship). But, on the flip side of my bad hair days in adolescence, if I know my new haircut is flattering, the faint praise of someone whose opinion I value shouldn’t throw me. She may be sinking underneath some pain she isn’t willing to share.

Trusting yourself is a scary thing. If you’re going to be truly honest, you know you have blinders. Still, that same honesty can save you when others are less faithful to the situation.

Be true to yourself.


Image Credits: (All) © RomanBen — Bigstock